Hope, Access, and the Future of EB Care

Podcast: PeDRA Pearls · Pediatric Dermatology Research Alliance

Opublikowano: 2026-09-14

In this episode of PeDRA Pearls, host Jenn Dawson welcomes back Emily Gorell, DO, of the University of Colorado to discuss the growing momentum within the epidermolysis bullosa (EB) community. They explore the impact of new and emerging therapies, the importance of centering patient voices, and ongoing challenges related to treatment access and adult EB care. The conversation also highlights opportunities for multidisciplinary collaboration and the vital role of patient-focused meetings in advancing meaningful progress in EB research, care, and advocacy. Pediatric Dermatology Journal This episode is presented by Disc Medicine. Although Disc Medicine provided...