Turning Loss into Purpose: Running for PHACE and LUMBAR Research

Podcast: PeDRA Pearls · Pediatric Dermatology Research Alliance

Opublikowano: 2026-10-26

In today's episode, Denise Metry, MD, shares how mentors, patients, and unexpected opportunities shaped her career and commitment to PHACE and LUMBAR syndrome research. She discusses the power of multidisciplinary collaboration, patient-guided priorities, and the upcoming 2027 PHACE Syndrome Community research and family meeting. She also reflects on transforming personal loss into purpose through her 2025 Boston Marathon fundraiser, which raised $40,000 for future research. This episode is presented by Palvella Therapeutics. Although Palvella Therapeutics provided funding for this PeDRA Pearls Podcast, the contents of the podcast were developed independently by PeDRA. Learn more about Palvella Therapeutics.