Bonus Episode: Understanding EB Clinical Trials - A Family and Clinician Perspective

Podcast: PeDRA Pearls · Pediatric Dermatology Research Alliance

Opublikowano: 2026-10-30

In this episode, clinicians and a parent advocate explore what EB research and clinical trials mean for patients and families. Pediatric dermatologist Lara Wine Lee, MD, PhD, and Deana Calhoun, whose daughter Cooper lives with recessive dystrophic epidermolysis bullosa (RDEB), discuss the research pipeline, treatment studies, placebo-controlled trials, eligibility, informed consent and assent, and the practical realities of participation. Their conversation highlights the importance of clear communication, patient-centered trial design, and including children and families in decisions about research and care. For a complete list of guest disclosures, please click here. Special thanks to BioMendics...